Well, Thanksgiving has come and gone and we're now on a new remedy. According to the doctor, she is pleased with Julie's progress and says it's time to move on to the next phase. In the first two months, the good doctor had her on
Stramonium . According to the materia medica (I hope I'm saying it right) fit Julie's initial fears of the dark, night frights, terror, and, for the most part, the symptoms seem to have subsided. She no longer feels the need for the overhead light to be on at night and has even asked that her bedroom door be closed all night. I don't know whether to put that in the "healed" column or "new symptom" column.
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Anacardium Orientale |
For the past two weeks, we've been provided the remedy
Anacardium Orientale, which to a large extent seems to meet our current need to help Julie deal with fears, scared, anxiety, insecure, obstinate, and lacks self-confidence. So far no changes in behavior or habits, but patiently waiting for the light.
Our nighttime routine has improved somewhat, however the time she requires to prepare for bed has not improved much at all. She seems to
want to take care of herself at bedtime most nights by telling us she's going upstairs to get ready for bed and that she'll call us when she's ready [for prayers]. The challenge is to get her to understand that the toilet is NOT a place to sit forever while attempting to push every possible drop of urine and/or feces out of her body. There are nights where she is on, then off the toilet in minutes, but most nights she's on the toilet for 10, 20, sometimes even 30 minutes. Every time we get frustrated and ask her why she's sitting so long, her response is, "It feels like it's right there and it will not come out!"
We think this is a psychological challenge with Julie. You see, back in January she had to be "cleaned out" at the local children's hospital because she was severely impacted. She was traumatized by the experience because they had to put a tube down to her stomach through her nose and slowly drip a product called
Nulytely to her stomach that essentially cleaned her out. It was very traumatic to see your daughter drugged first, then a tube put down her throat, watch her struggle with it, then void her body (which at that time she weighed under 70lbs) over a 24 hour period. I will not get into the horrific crying, screaming, and pleading to take out the tube, but suffice it to say that I laid by her side while she cried in pain and agony and we came out of the hospital completely cleaned out.
That's not the end of the story though. She didn't start eating right away. She stated her stomach hurt really bad and anything she ate came right out (both ends). The gastro specialists basically stated she needed some probiotics to help her reestablish the good bacteria colonies needed to digest food and that should help get her back into balance. The gastro doctors highly recommended a probiotic called
VSL #3. This probiotic has to be refrigerated and costs upwards of $70 with shipping. The good news is it works. The bad news is you can't take it on long road trips unless you have a very cold cooler. We're thinking of an alternative now that she's been using it for close to a year and it has truly helped control her GI challenges with being on a prophylactic dose of Keflex every day this year (750mg/day).
Anyway, back to what I was talking about. My point here is that psychologically, this experience has led her to obsess over eating healthy (if only our society did as much to reduce the obesity pandemic in our children today) and not eating too much. She has it in her mind that if she eats too much, regardless of whether it's healthy or not, she'll vomit or she'll get constipated and have to go back to the hospital for another cleanout. No matter how much we assure her that she's not going to go through that again, she still worries. And at thirteen years old and under 80lbs, I tend to worry that she's not taking in enough nutrition to help her growing body thrive! Today she doesn't weigh enough to enable the passenger side airbag. We try to make light of it when she's had a good meal and gets in the seat and notice the airbag light is turned off (meaning she weighs enough), but as a father it still concerns me.
So, we're still dealing with her extreme fear of smells (as I mentioned last posting about the roasted chicken smoke in the oven), and her stomach not really feeling very good on a regular basis. Just last evening, Julie helped me put out the Christmas deer and the pond (you know, the metal framed deer with lights all over them for the yard) and right in the middle of putting them in place in the front yard she starts weeping because her hands smelled wierd like the grass and the deer. I told her to look at me in as soft a tone as I could and said, "I love you, Julie. Do you want me to talk you through it?"
"No, I'll be alright," she said as she sniffled through a wavering voice as she continued anchoring the deer's legs into the ground.
"Julie, look at me again. I can talk you through it if you want. It's okay to get help. Remember, mom and I love you. You sure?" I went about my motions trying to lock down my doe's legs into the hard clay soil. It always amazed me how grass could grow in such a silty hard-clay soil, but it does.
"I know, I'll be okay." She went back to her work but I still persisted in asking her the questions that have formed a mantra over the years.
"What's more important; the smells or having fun putting out the Christmas deer?"
"Having fun."
"And history has taught you what about smells?"
"That they go away."
"Right. And that the will not....."
"Harm me," as she moved to the next leg to anchor with a stake.
"And that they eventually..." I coached her as I moved on to connecting the power cords in the back of the deer. I had run a green extension cord from the front door where there is an external power plug and put three multi-plugs on the end so we could get all three deer and the pond connected.
"Go away." By now she had started to sound like she was calming down, but still sniffling as the tears drained from her eyes down into her sinus cavities.
"Exactly. So, let's just have a good time putting out the Christmas lights and instead of smelling your hands, do the opposite; don't smell them and focus on the fun."
"Okay. Hey, can we get the red rope lights out and wrap them around one of the trees? Please? It will only take a couple of minutes." Her demeanor seemed to be back to that of a jubilant thirteen year old girl still holding on to the spirit of a child at Christmas, yet struggling to identify herself as a young lady that's maturing on a daily basis.
"No, honey, you have to go back inside and fininsh your book report. Let's finish this up and get back inside." You could see her eyes pleading for just a few more minutes away from that darn book report, but despite my own interest to keep her outside and having fun, I put my fatherly hat on and refused once again.
Here's the difficult part. She was up until 10:30pm last night finishing up that darn book report! We were so angry with her for waiting until the day before it's due to put any effort into the report. It was supposed to be a rough draft that could be either typed or hand written. Instead, Julie put so much effort into it that it ended up being typed, double-spaced, all parts of speech labeled and callout boxes pointed to the underlined areas of speech, three pages long and seven paragraphs long. When I sat down next to her she sounded so defeated and tired.
"Is it okay, Daddy? Is it too long? It's too long isn't it, Daddy? I hate this so much! Do you ever find it hard to write something when you don't want to, but when it's something you want to write you can do it in a matter of minutes?" You could visually watch her shrivel in her chair as she contemplates her over-achievement in this assignment whic only required 25 sentences over five paragraphs.
"Julie, I'm sure it's fine. I'll read it over like you asked and let you know. Right now you have to go to bed, so go get ready for bed while I read it over, okay?"
"No, I have to redo my bubble map! It's too sloppy and he's going to give me a bad grade," she started to raise her voice at us as she felt the pressure of us requiring A/B work from her, which in her mind means we want her to be perfect. It went downhill from there. She snatched the paper and started to rewrite this bubble map while tears dripped down on the new paper.
"Julie, this bubble map looks great! I can read it perfectly fine."
"No, it's sloppy and he's going to count off for it not being neat!" She snatched it back from me and began writing again. Well, a wise parent would have let her complete the rewrite, but Beth and I wanted her to get some sleep, so I snatched it back and said, "No, you're not redoing it. You're tired, you've worked very hard today to finish the report and you need to go to bed."
It escalated from there. She grabbed it back and kept going. I pulled both the paper and the binder she was bearing down on from her lap, put it beside my chair and told her I'll read it and let her know if it needs to be rewritten.
"All you're going to say is that it looks fine and you can read it even though you know it's sloppy just because you want me to go to bed!" By now she was yelling and staring me in the eyes as if she could scream.
"No, Julie. Why in the world would I lie to you? Comeon now, just go get ready for bed, I'll review the report, then I'll read the bubble map, and if there are corrections to make, we'll make them right before we print it."
At this point she was absolutely unmoveable. She started to jump up at me to grab the binder and paper to get back to rewriting the map. I snapped. I grabbed her around the chest and attempted to redirect her away from where we were sitting and walk her towards the bathroom. We didn't make it far. She straightened up her body and arms trying to escape my grip and yelling, "What the heck? Why are you doing this? Let go of me I need to rewrite my map! Stop it!" The drama continued for a few minutes as I tried to explain to my wife (who had been right in Julie's face yelling at her to stop obsessing over the bubble map and go to bed) that I was trying to physically move her out of the situation so she could move on.
I let go of Julie only to watch her lunge past me to get back to the paperwork. I finally snapped and sent a barage of "Go to your room," until the last one was at the top of my lungs, "GO TO YOUR ROOM NOW, JULIE!" She ran to her room and slammed the door while I stood where this all started and looked at my wife wondering what in the world just happened.
Beth clearly identified the problem by turning to me saying, "Well, I guess I didn't help matters much by screaming at her right in her face telling her to stop this." I simply nodded and repeated the same apology for yelling at her to go to her room and by getting physical with her. Don't you just hate it when you know what you SHOULD do or SHOULD say, but instead you let the adrenaline of the moment kick in and instead of thinking through what to do, you act on your instinct to
just get this over with?! Well, she managed to get to bed around 10:30pm last night and, had she spent a "normal" amount of time on the toilet, she would have been in bed by 10:00pm.
This morning was difficult to say the least. None of us got out of bed on time. We were all drained from the previous night and Julie was no exception. She got out of bed 30 minutes behind schedule and was attempting to put in her contacts and one contact failed after another on the left eye. After the third try, she screamed for mommy to come help her. By then mommy was downstairs attempting to eat her breakfast before heading off to classes (she's studying to be a sonographer), so Beth told her to come downstairs and she'll help her put in the contact. Well, that didn't sit well with Julie. It's not part of her routine, which is very strict, so reluctantly she stomped down the stairs to have mommy put in her contact lense.
After this, it was a rush to get through her cereal, then off to the stairs to brush her hair and teeth while attempting to get her clothes picked out, which is a struggle in and of itself. Beth went off to school and I stayed behind to make sure she made it to the bus. I've never seen her in such a flustered state of affair. She got through all these things I mentioned and ran down the stairs saying she's so late. The bus wasn't coming for another ten minutes, so I'm not sure where she got that idea from. I was wise enough not to engage in a futile conversation as history has taught me one thing; don't take the bait of negative thinking. Wait for her to calm down first, then engage when she's more receptive to coaching.
She must have forgotten something because she started growling at herself and calling herself stupid and an idiot and ran back up the stairs crying about missing the bus. She finally came back down the stairs and sat on the foyer tile attempting to put on her socks and shoes. She took her frustration out on her socks while I finished brushing my teeth upstairs and began to walk down the stairs saying that, "these socks are getting too small!" I didn't take the bait and merely went about my routine as I prepared to leave for work this morning.
I walked passed her and started gathering my baggage, my lunch, and my laptop case to put it in the car and Julie pleaded with me, "Don't go yet!" I looked at her and as calmly as I could, told her that I was simply putting my stuff in the car to leave after she did. That seemed to calm her somewhat.
After putting my equipment in the car I came back in the house and went back to the front door and opened it. "What are you doing that for?"
"I thought you were ready to leave," I said in a questioning tone.
"No! Not yet! I'm still trying to get this stupid jacket on and my backpack. I hate backpacks! I hate school! I never want to go to school!" She was fidgeting with her hood on the sweater so I gently reached back and held it up as she fixed her hair and the straps on the backpack.
This time, I took the bait, but I said, "Well, if you hate school, then don't go. You'll get a zero for the day, but that's your choice." I'm not sure that was wise, but it seemed to stick, for her reply was, "I wish I could!"
As she finally headed out of the front door, down our steps and onto the sidewalk she was whimpering a little to herself. My heart reached out to her and I said, "I love you." The response was a short, yet pleading voice; "I love you too."
We'll see how the new remedy affects her over the course of the next few days, but suffice it to say that the stresses of honors classes at middle school, the load of homework dumped on her and her classmates right after the Thanksgiving holiday, and the challenges of managing time seem to have taken a toll on her. My prayer is that tonight when I return from home she does not have a lot of homework, so we can just play, or run, or shoot some hoops, or anything besides the stresses of school.
Lord, heal our daughter! In your son's precious name I pray, Amen.